Staying Connected While Letting Go The Paradox of Alzheimer's Caregiving

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Edition: 1st
Format: Paperback
Pub. Date: 2005-02-07
Publisher(s): M. Evans & Company
List Price: $18.13

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Summary

This timely book, laced with poignant stories, focuses on the emotional impact of this disease on the caregivers and offers specific coping strategies they can use to keep them emotionally sane in this chaotic time.

Author Biography

Sandy Braff, M.F.T. is a licensed individual, marriage, and family therapist in private practice in San Diego. Since 1989, she has facilitated a weekly Alzheimer’s Caregiver’s Support Group for the San Diego Alzheimer’s Association.

Mary Rose Olenik participated in an N.I.H. grant studying the effects of stress on the immune system of Alzheimer’s caregivers while a Staff Research Associate in the Department of Psychiatry at University of California, San Diego. She lives in New Hampshire.

Table of Contents

Foreword xi
Preface xv
Acknowledgments xvi
Introduction 1(6)
Part One: The Beginning Stage
First Encounters
7(4)
If Only I Could Be Wrong: Tentative Diagnosis
11(10)
Beginning Stage Behaviors
The Importance of Seeking a Diagnosis
What Now? Reactions to the Diagnosis
21(10)
Disclosing the Diagnosis to the Patient
Disclosing the Diagnosis to Others
Legal and Financial Preparation
Reaching In and Reaching Out: Adaptation
31(8)
Adaptation to Role Changes
Coping and Resilience
Rallying the Troops: Family Reactions
39(6)
The Shell Without the Pearl: Transcending Loss
45(26)
Loss of Mutuality
Loss of Personality
Loss of Communication
Loss of Physical Intimacy
Loss of Partnership
Loss of Sense of Belonging: Isolation
Discovering the Paradox of Caregiving
Part Two: The Middle Stage
Coming to Terms
71(8)
The Importance of Acquiring Coping Skills
Managing Your Attitudes and Thoughts
Middle-Stage Behaviors
Your Role in the Accomodating to the Middle Stage
Confronting the Demons: Your Emotional Reactions to the Middle Stage
79(32)
Denial
Resentment
Guilt
Fear
Frustration
Tears of Laughter: The Importance of Humor
111(4)
The Power of Laughter
The Mars and Venus of Adapting to Change: Gender Differences
115(10)
The Lonely Bed: Adapting to Profound Loss of Intimacy
125(10)
Understanding Sexual Behavior in Alzheimer's
Extramarital Companionship
Harvesting Your Communal Garden: Preventing Burnout
135(14)
Taking Time out for Yourself
Day Care
In-home Care
Going It Alone
I Think I Can, I Think I Can, I Know I Can: Resiliency
149(8)
Coming to Terms with the Challenges of Alzheimer's
Part Three: The Late Middle Stage
The Long Good-bye
157(6)
Late-Middle-Stage Behaviors
Loss of Recognition by Spouse
I'm Beat and I'm Scared: Caregiving Intensifies---Resource Options
163(26)
Family Involvement
Alternatives to Placement
When Placement Becomes Necessary
The Angst of Placement
Transitioning to Life Alone
When Alone Equals Lonely: Loneliness and Companionship
189(10)
Part Four: The Final Stage and Beyond
Nearing the Journey's End: Final Stages of Alzheimer's
199(8)
Final Stage Behaviors
The Relief of Planning Ahead: Advanced Directives
207(6)
Allowing for a Natural Death
Another Paradox: Anticipatory Grief and Mourning
213(4)
At Peace, My Love: Death of a Spouse
217(10)
Cleaning out the Closets: The Process of Closure
227(4)
Honoring Your Tomorrows: Reentry Post Caregiving
231(14)
Getting Started
Successfully Coming Full Circle
And You Shall Triumph
Bibliography 245(2)
About the Authors 247(2)
Index 249

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